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Gigi's
Story
Georgia, "Gigi", was born on January 16, 2002. She was born
with a serious intestinal problem, which required surgery within hours
of her arrival. We believed that she would be hospitalized for 6-8 weeks
and then we would bring her home. However, during what we thought was
a phenomenal recovery, Gigi's direct bilirubin escalated to dangerous
levels. At 10 weeks of age, Gigi was diagnosed with Biliary Atresia, a
disease that affects the liver, there is no known cause and no known cure,
however, a liver transplant can stabilize the condition and give the recipient
a chance a life. Biliary Atresia is the leading cause of pediatric liver
transplantation.
Gigi remained
in the Neonatal Intensive Care Unit for six months. As Gigi approached
her eighth month, her liver began to decline rapidly and we began the
listing process. However, on the exact same day that we were to be listed,
Gigi was taken to surgery to repair intestinal blockage. Her liver was
much more damaged than anyone had imagined, and could not withstand surgery.
She fought diligently to stay with us; unfortunately, due to her extensive
liver damage, Gigi became a child of God on Tuesday, September 24, 2002.
It greatly
saddens our family to know that if there were more organ donors, our Gigi
might still be with us. We want to tell parents of younger and older children
alike, to consider organ donation, not only for themselves, but also in
the case of a tragedy, for their children as well. Making a decision like
this can be the greatest gift of love ever made. However, this is not
a decision that can be made at the time of tragedy, it needs to be carefully
thought out beforehand. We wish no one to have to make this heart-wrenching
decision, nevertheless, accidents happen, and others can be given the
miraculous gift of life. We can honestly say that before we were blessed
with our angel, Gigi, we had never even thought about organ donation,
especially for our children. Now, however, because of her, we strongly
believe in making this decision for ourselves, and for our children.
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